Volunteers Needed For A Research Study Investigating Disease Progression and Quality of Life in XLH

We aim to investigate disease progression and quality of life of adults living with a diagnosis of XLH.

Participants must

  • Have a diagnosis of XLH
  • Be aged 28 or over
  • Be able to read and converse in English

Participants will be asked to

  • Take part in a study interview discussing their experience of living with an XLH diagnosis, taking approximately 1 to 1.5 hours
  • Complete a series of quality of life questionnaires taking approximately 30-40 minutes each time

This study involves a total of 5 telephone calls over 12 months with a researcher from Medialis.

If you would like to receive more information on the study, please email [email protected] or telephone: 07879994131 ([email protected]).

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